Friday, September 19, 2014

More Cautious Optimism

Evie is now 10 months old and is bound and determined to walk on her own.  Despite the lack of balance, coordination, core strength....

No, she doesn't care.  She's gonna do it.  And she's gonna get mad when she can't quite get to where she needs to be when she needs to be there, and vertically.

At this same age, Henry was still doing the military crawl across the floor.  His FXS-related lack of tonus made 4-point crawling (hands and knees) difficult and certainly delayed his physical ability to stand.  When he finally did get up on his feet, he was still stumbling while suspended from our hands.  His PT encouraged us to help him walk by holding his hips instead of his hands, so that he'd develop both the physical and mental abilities to balance and coordinate better.  That was hard since that mean that we had to get down closer to the floor and scoot around on our knees.

Evie, however, merely uses our hands for balance.  She's learning how to use objects -- the couch, a table, her father -- to climb up onto her feet.  One day, I watched her calculate how to get from the exer-saucer over to her walker and make the determination that the distance was a bit much for her to reach over, so she instead reached for my face as an intermediary handhold.

Then, after being clawed and raked across the face by her tiny hand, I had to trim her nails.

I know every kid is different, and that we can't just think that because she's a girl and girls statistically are less affected by FXS than boys that everything's just going to be fine.  I can't compare her to Henry because that's unfair to both of them.  But there's still that hope in the back of my head, that maybe she will be okay.

There was, of course, that gut punch from my post in April about her evaluation.  We'd gotten her enrolled in EarlyOn, but apparently, she progressed significantly in physical development over the summer.  At the end of her spring sessions, we were to work on her ability to get from place to place on her own by any means necessary, whether by crawling, cruising, scooting, rolling, etc.

Within the first few weeks, she was on the move, doing the military crawl.  Maybe about a month ago, she started transitioning more toward traditional crawling (something Henry only started doing earlier this year strangely just after his ability to walk kicked in seemingly without warning).  She's transitioning from floor to seated position more frequently and on her own.  We were overjoyed when she started picking up food and eating it on her own, and that she's already started on solid "human" food (some; she still has a bit of texture issue).

It's hard to restrain the hope that she won't have as many developmental issues.